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arnlybub
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Joined 8 years ago
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Re: COVID booster shots
I was at my GP yesterday for something else and mentioned getting the booster. The practice just happened to be running a Pfizer vaccine clinic at the time, my Dr went out out and came back with the injection and did me there and then. I'd had AZ in May and July. Had the whole gamut of side effects with the first AZ and nothing with the second. Last night and today I feel like I've been run over by a truck - teeth chattering, whole body aches and as weak as a wet kitten, bit of a fever (38.2) and a really sore arm. I'd forgotten how crap I'd felt with the first dose (bit like chemo!). I'd be interested to see if anyone else displays the same symptoms - I'm 54 so in the prime range for side effects.4Views0likes0CommentsRe: CEM - Contrast Enhanced Mammography - anyone heard of it? Supposed to be good for Dense Breasts
Hi @Cath62 Here's some research I found - https://cebp.aacrjournals.org/content/26/6/930#:~:text=Treatment%20with%20tamoxifen%20reduces%20breast,women%20with%20high%20breast%20density. https://www.adelaide.edu.au/robinson-research-institute/news/list/2020/12/09/women-should-be-told-about-their-breast-density-when-they-have-a-mammogram Hopefully the links will work. There's actually a lot of studies on this but mainly from overseas. Have a good day :)26Views1like0CommentsRe: CEM - Contrast Enhanced Mammography - anyone heard of it? Supposed to be good for Dense Breasts
Yep, I had no idea that density could change either! Initially I thought it was due to ageing but from the studies I've read the reduction in density indicates a good response to Tamoxifen. I'm going to ask my MO about it when I see her next.17Views1like0CommentsRe: Should I be worrying about potential restrictions to medication access?
I haven't been able to get my normal Sandoz brand Tamoxifen for a couple of weeks I had to go with Genex brand which for some reason has started all the joint pain side effects again but the hot flashes have decreased (touch wood). The pharmacy had a lot of orange 'out of stock' tags on the items behind the counter. Luckily I get all my other meds from an online pharmacy and I can get the entire 6 month prescription in one order. I've got toilet paper on my shopping list this week - not for stockpiling - I'll probably have to buy it from the scalpers :#4Views0likes0CommentsRe: Newbie
Hi Greengirl, I'm in Wagga and am happy to help with some of the questions you might have re your diagnosis and treatment. I was diagnosed in April 2018 and had chemo and radiation at the Calvary Cancer Centre in Wagga. I know that there is community transport available and also Lillier Lodge provides accommodation to those undertaking treatment from other towns in the Riverina. Has the McGrath Nurse been in touch with you yet? I know it's scary as anything at the beginning but believe me it does get better as your treatment plan goes into action. Ask me anything you like and I'm happy to catch up with you when you're in Wagga. Take care and as the others have said, you're not alone in this xo19Views0likes0CommentsRe: Work
Hi Glynnis, I'm not in your position but I've found this link which I think is up to date. As far as I can see you would be entitled to the Disability Support Pension: https://www.dss.gov.au/our-responsibilities/disability-and-carers/benefits-payments/disability-support-pension-dsp-better-and-fairer-assessments/fast-tracking-disability-support-pension-claims-for-people-with-profound-disability-or-terminal-illness Good luck and I wish you well.Re: Chemo brain - what are your experiences?
I was trying to tell my colleagues something my oncologist had recommended for hot flushes but for the life of me I couldn't remember the name of it. I was poking my workmate in the arm over and over saying 'you know - those sticky in things' poking her ferociously. Eventually they clued in that I meant acupuncture and needles. Talk about embarrassment .... not to mention the bruises I caused to my workmate!6Views0likes0CommentsRe: Organ Donation
Hi there, I was really interested in this as I'd been thinking about whether or not I could still be a donor after bc. I emailed donatelife.gov.au yesterday asking if I should remove myself from the register and got this response: "Thank you for contacting DonateLife, and for sharing your personal circumstances. There is no reason you can’t stay on the Register to be a donor. In fact, if you are willing to be a donor, we encourage you to keep your decision on the Australian Organ Donor Register. This way your Doctors and family know you want to help if you can. The determining factors for organ donation are where and how a person dies, and hospital staff take a medical history from the relatives of the deceased and from the medical staff tending to the patient at the time of death. They then follow up with GPs and specialists, as appropriate, who know the patient and are familiar with their medical history. It is important that you discuss your donation decision with your next of kin, and that you ask and know their donation decision. Families play a crucial role in the donation process because they are asked to confirm the donation decision of their loved one. The family will be involved in each step of the donation process and be asked to provide vital health information – even if you have registered your decision." Isn't it confusing the amount of conflicting information you get from different agencies!!3Views0likes0Comments
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Genetic mutations & breast cancer
This group supports people affected by genetic mutations—like BRCA1 and BRCA2—that increase the risk of breast cancer. Whether you carry a mutation yourself or someone in your family has been diagnosed, you're welcome to connect, share experiences, and find support from others navigating similar experiences.
