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Sunshine0206
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Joined 8 years ago
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Re: Should I be worried
Hi I’m on Sunshine Coast. My breast surgeon is Awesome. I don’t think I can mention her name here.She is excellent by my personal anecdotes and by professional ones. Pm me if you want her name. GP referral will get you into her. Ochre medical centre Sippy downs have good gps. cheers11Views0likes0CommentsRe: Anyone had ovaries removed to lessen BC coming back?
Hi there. i was diagnosed last year at 40. I started on tamoxifen and my oncologist monitored my oestrogen levels. Unfortunately they started to increase but no return of my period. i was started on zoladex. Once bloods confirmed menopause, I was commenced on exemestane. I have found it much kinder than tamoxifen. I take a calcium/d supplement. My surgeon/oncologist/radiation oncologist/gynaecologist have all advised me that they believe oophrectomy is my best option. Quite frankly I don’t want an injection every month. The 5-10% failure rate is off putting as well. So 5 more sleeps until surgery!!! Woohoo!10Views1like0CommentsRe: Horrid Bone and Joint Pain after Pegfilgrastim (Neulasta) injection????
Yes. Had awful reaction. Ended up in ed. The pelvic pain was beyond awful. I had a pv bleed with it too. Went to ed as it was so painful and terrifying. White cells were through the roof. i refused to have it ever again. I managed the remaining cycles carefully and without incident.56Views2likes0CommentsRe: Exemestane and zoladex
I’m on my fourth month of exemestane/zoladex. It’s not too bad. Better than tamoxifen. I don’t have aches more like stiffness. Would I have had that without breast cancer? Maybe. I won’t ever know. I find that I feel much better if I exercise. Ovaries/tubes being removed in 6 sleeps. Then no more zoladex. I actually think the zoladex makes me stiff. I was on it for a month before starting exemestane. Anyway we shall se what we shall see after the surgery.14Views0likes0CommentsRe: Can tamoxifen cause extreme fatigue
For what my experience is worth, I took tamoxifen for 5 months. I was so foggy and tired. I have just started exemestane (day10) and zoladex( month 2). Touch wood 👐🏻 I continue to feel as good as I feel now. The problem is we need these drugs. Need them badly. X14Views1like0Comments- 8Views0likes0Comments
Re: Exemestane and zoladex
Lol. Trial! Small sample size!!! I get you. Thank you. From what I can make out it’s a steroidal AI? The other two are non-s AI. I spoke to pharmacist yesterday and he said the steroidal AI act more like the molecules they are trying to block. Quite frankly I don’t care. 🤣 Long as it works. Yes am seeing surgeon in 2 weeks to have ovaries removed. @Zoffiel Did you have Zometa? x8Views0likes0Comments
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Young women & breast cancer
This group is for young women affected by breast cancer. In the context of breast cancer treatment, ‘young’ usually refers to women who are pre-menopausal. Here, you can connect with others who understand the unique challenges that come with a diagnosis at a younger age. We talk about things like fertility, pregnancy, early menopause, ovarian suppression, relationships, and the emotional impact of treatment and recovery. Whether you're newly diagnosed or further along in your journey, this is a safe space to ask questions, share experiences, and support one another. You are not alone during this uncertain and overwhelming time.