Smileyfrog
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New Drug
A bit of a long shot, but thought I would ask. I finished my last herceptin a month ago. My oncologist just called today offering a new drug made avaiable in tablet form. This is to be taken for 12 months. Suppose to improve chance of recurrence over the next 5 years by 5% in most cases. He said could even be more for me as I had one hell of a tumour. This drug also comes with a price $24000 and size effects. I didnt ask what it was called but I wish I had of. Might check in with my breast care nurse tomorrow. Does this info sound familiar to anyone? I already forked out $10000 to pay for Perjeta as part of my treatment plan. So more money is really out of the question. I just had my first lot of scans early this year and they came back all good.146Views0likes2CommentsPost surgery fluid.
I'm almost 3 weeks post surgery. Right breast mastectomy and 2 lymph nodes were taken for testing. I saw my surgeon on Friday, he removed dressing. I'm still quite bruised and swollen. The fluid seems to be moving up my chest a little. Not in pain, just a discomfort. Surgeon said the fluid will aid the healing. He is also reluctant to drain it at the risk of infection. I know we all heal at different rates but wondering if there is anything I can do to move it along for example Hot/cold packs? I also have to do radiation, so I'm worried my surgery site won't be healed in time.93Views0likes2CommentsRe: Perjeta costs
Hi @poddlejules, I've just recently finished chemo and 4 perjeta infusions over 12 weeks. I'm going through the public system and had to pay the $9000 for perjeta. A lot of money, I was lucky enough to get some help from my family to cover costs. I had a mastectomy and lymph nodes out for testing 2 weeks ago. My pathology results were all clear. No cancer present. Specialists saying largely due to the perjeta. Perjeta is free to people who have a reacurrance, but they are trying to have it available for newly diagnosed people. Hope this helps. Xo21Views0likes0CommentsRe: Ups and downs
Ive got 2 more taxol to go before a lumpectomy and radiation. While my oncologist is positive I will beat this, it doesn't stop me thinking about my own mortality. My journey so far has been manageable. Im still working and doing most things as normal. I'm a positive kind of person, but my family get upset when I talk about death. In life, no one can predict what our future holds for us. I have been thinking a lot about my own funeral recently. I dont intend to go any time soon, but to have my wishes out there has to make life easier for those we leave behind.4Views0likes0Comments
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