Macca1961
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Joined 8 years ago
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Hi all,( first timer) Quick short history: I was diagnosed with BC in early Aug 2017(lobuler, already in nodes, aggressive, hormone responsive) had mastectomy end of Aug and started AC in Oct. Completed my round of AC x 4 in Dec. No real problems. Had a little rest then started Paclitaxel in Jan 2018. I have had 3 of weekly my 12 rounds of my treatment has stopped due to extreme tingling and pin/ needles in my hands and feet. Visit oncology doc today and have been told that I probably won’t continue this treatment due to the serverity of the nerve damage that this can cause. He explained that continuing could damage the nerves to the point I would be quite unable to walk etc. Have to say I was mildly upset in hearing this, is an understatement. Been teary all day. Seems I am very sensitive to Paclitaxel. He explained also that a lot of women don’t get past 8 treatments as that is when the nerves start playing up. The Doctor is running tests and we go back to see him next Friday. I still have to do radiation ( which the doctor is currently trying to get started earlier) and hormone inhibiter treatment as well. Has anyone on here stopped Paclitaxel before the 8th round especially looking for anyone who has stopped after 3 or 4 weekly treatments? Really need to talk to someone, very very confused and slightly upset, would like to know how they handled being told “you are stopping treatment after being told you needed it to survive”?
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