Jane-Altona
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Re: Any help gratefully accepted - Letrozole and the blues
Hi Romla, I've been on Letrozole for 18 months. I think I have two ongoing side effects, hot flushes & anxiety attacks. As I also wanted to avoid more drugs I've had a few sessions with a psychologist. It has helped, I still occasionally get the attacks but I now have strategies to deal with them. I think you can get some free sessions if you go through your GP and ask for a mental health plan. As for the hot flushes I just don't go anywhere that doesn't have strong airconditioning :)4Views1like0CommentsRe: Letrozole
Have been on letrozole for 18 months. At first I took it in the morning but have changed to the evening, this seems to have helped with the stiffness and muscle aches. I take panadol when needed. My biggest side effect has been bad hot sweats and the feeling of always being warm. I don't go anywhere without airconditioning! They have suggested a very low dose of an antidepressant to help but I'm trying to avoid this. Otherwise it doesn't seemed to have effected my weight and fortunately my bone density is very good but I'll be tested again this year.4Views0likes0CommentsRe: Carman Fun Run St Kilda December 2017
Hi Monica, I'm also a regular runner & ran through chemo although it got very very slow & short towards the end. parkrun is awesome! You do need a goal to get back into & I can't think of a better one for you. I did the run Melb 10 last year as my first as I finished chemo in May 2016. It was hard but I did it & the finish was very emotional. I do recommend that you see a sport physiologist if you can as I found that my muscles & tendons needed work to get 'loose' & build back normal strength for running after chemo. You can get referred by your GP. I would love to join you in December, I'm in Altona. Cheers, Jane2Views0likes0CommentsRe: Letrozole Ladies
Hi Tennille, I've been on Letrozole for 1 year now. From the beginning I have suffered from the hots sweats and bone pain. I think I mainly get the bone pain when I'm over tired, run down or about to get sick with a cold or something. I take ibuprofen & panadol osteo to dull the pain & wait it out. The sweats are everyday & night. The worse ones are those that start with a feeling of anxiousness, fortunately I only get these once or twice a week. Can't do much for the sweats but keep a fan handy & refuse to go anywhere without airconditioning! But I do think either I'm coping better with them now or they have lessened over the last 6 months. I don't suffer from fatigue now but I did when I first started but I put it down to still recovering from chemo, radiation & the fact my body was a wreck. Take care, Jane4Views0likes0CommentsRe: Newly diagnosed
Hi Cyclo, I am a runner. My running program pre bc was usually about building to a marathon so the training was long & intense. Post treatment I was able to get back to running but about 4 months in I felt I was not improving or able to do what I did before ie the length & intensity. I ended up going to an excercise physiologist. I basically needed an 'all of body overhaul' to get me back to 'me'. It's been a huge help. I still don't have all of my speed back & still do feel different but I'm now able to train for the Berlin marathon in Sept. X Jane1View0likes0CommentsRe: Damn it damn it damn it white blood cells too low for next FEC round.
Hi Unicornkisses, I too had to wait a week before the 2nd round of FEC due to my low count, very annoying when you prepare yourself mind & body for the next session. I was quite shocked as I felt so well. Had the Neulasta injection each round from then on. I got bone & muscle ache, I used panadol plus it seemed to help if I did some excercise eg a walk, bike ride. I always thought of the ache as my body making good white cells :)0Views0likes0CommentsRe: Radiotherapy side effects
Hi, I had 20 sessions in July last year. After chemo (6 X FECD) it felt easy, but this might because chemo was really bad. I have very fair skin and only went a bit red. I did get some quick sharp pains in the breast for about a month after and it itched on the surface and deep inside. The hospital gave me mountains of sorbolene cream and Solugel so I used these as much as possible :) The nurse had a look at it every 3 days to make sure I was ok. Hope it goes well for you. X Jane3Views0likes0CommentsRe: When to go on a long holiday?
I to went to an excercise physiologist post treatment as I felt I needed a 'whole of body' plan. I had lost all muscle strength and was feeling like I was as stiff as a board with some muscle spasms. The excercises (strength & balance) have really really worked. I feel quite confident about trip now.1View0likes0Comments
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