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Emma_BCNA

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Joined 1 year ago

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Living with metastatic breast cancer in QLD?
Good afternoon, I hope this message finds you well. We're looking for individuals living with metastatic breast cancer (MBC) in Qld who may wish to participate or share a quote for a BCNA press release surrounding MBC advocacy. If you are interested please comments on this discussion or send an email to BCNA's Policy and Support Services Media and Communications Specialist: Edwina Pearse, at [email protected] by Wednesday 4 2025. More details about this engagement can be provided for those who enquire.
1 year ago Place Living with metastatic breast cancer
advocacy
metastases
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Prioritisation of prophylactic (preventive) mastectomy for people at high risk of breast cancer
BCNA Callout for your Help Under current national and state/territory guidelines for elective surgeries delivered through the public health system, a prophylactic mastectomy is treated as a Category 3 surgery holding a 365-day waiting period. BCNA is advocating for change because people at high risk of breast cancer shouldn’t have to wait this long to have preventative surgery. We have learned that people are receiving devastating breast cancer diagnoses while they are waiting. We have developed a position statement calling for the re-categorisation of prophylactic mastectomies for high-risk people (which we have defined as those with BRCA1, BRCA2 or TP53 gene mutations) from Category 3 (365 days) to Category 2 (90 days). This position statement will be launched at Parliament House on 21 November 2024. How can you get involved? BCNA is looking for people who want to share their story. Your contribution may form part of our paper and/or inform our ongoing advocacy on this issue. We want to display the true impact that a long wait for a prophylactic mastectomy has on the lives of people who are at a significantly high risk of breast cancer. What are we asking for? A 30-minute interview via Teams or phone, or email response to some questions, based on your preference. We are looking for people who have: Chosen to have a prophylactic mastectomy and are currently waiting to have their Category 3 surgery Received a breast cancer diagnosis whilst waiting for a prophylactic mastectomy via the public health system Waited beyond the 365 days recommended for Category 3 surgery Decided to have a prophylactic mastectomy via the private health system the because the surgery wait time through the public system was too long If you are interested, please contact Julie-Anne Pho, Senior Manager, Policy and Advocacy by 5pm AEDT 30 November 2024. By phone: (03) 9805 2509‌ Via email:[email protected]
1 year ago Place News and events
advocacy
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Living with metastatic breast cancer
This is group for people living with metastatic breast cancer (also called stage 4, secondary or advanced breast cancer). This is a safe, understanding space to connect with others who truly get what it’s like to hear the words that you are living with metastatic breast cancer. Together, we offer each other strength, compassion, hope encouragement and a place to talk openly—whatever you're facing.
Genetic mutations & breast cancer
This group supports people affected by genetic mutations—like BRCA1 and BRCA2—that increase the risk of breast cancer. Whether you carry a mutation yourself or someone in your family has been diagnosed, you're welcome to connect, share experiences, and find support from others navigating similar experiences.

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Emma_BCNA

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Living with metastatic breast cancer in QLD?

Prioritisation of prophylactic (preventive) mastectomy for people at high risk of breast cancer

Living with metastatic breast cancer

Genetic mutations & breast cancer