AineG
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Joined 9 years ago
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Re: Getting overies out??
Hi Bon Bon, I also had the ovaries out (kept uterus and cervix) late last year after twelve months on zolodex. I decided on this treatment not because of any fears for Ovarian Cancer (I'm not BRAC1 or 2) but after finding out that my particular hormone +ive cancer is more likely to recur after many years ie 15-25 years, than the more aggressive cancers which have a greater likelihood of recurrence in 2 - 5 years. Being given a five year treatment (zolodex) for a longer term issue didn't seem to make sense. NOTE: it's not that the risk of recurrence is any greater or lesser, just that the timing of expected recurrences is different. It seems I have more in common with Jane Fonda that I thought!! :) best to speak to your oncologist who can discuss your profile and whether or not ovarian cancer is a risk for you or not. Good Luck Aine20Views1like0CommentsRe: genetics
Hi Spillsy, I was diagnosed at 44 and with relatives who had also had BC I too was concerned for my sister and my nieces etc. With a fair few relatives with various cancers I went through a questionnaire with the genetics dept at Randwick, the result of which was that given how many relatives I actually have (Irish family) and their ages when diagnosed I had a less than 2% chance of mine being genetic. You can talk to your oncologist about whether or not it's worth doing the questionnaire in your case. Aine17Views0likes0CommentsRe: Goserelin & Exemestane treatment
Hi Barney74 I did Zoldex for a year before opting for ovary removal. yes, each one Zolodex & Exemestane are $38 each on the PBS. If you opt for the Aromasin Brand most chemists charge a little more (mine charges $42) but the generic Exemestanes work just as well. Good luck15Views0likes0CommentsRe: Just need some advice.
Hi 3boysmum, if right now you are able to work full time, then you have just as much right as anyone to go for that job.... so many people take full time jobs then change their minds..... employers adjust to each persons circumstances. As for the cancer coming back, I think like the others say time will help. sounds to me like you're half way to two years and So far so good, right? only 12 months to freedom......27Views1like0CommentsRe: Got the shits with having no tits!
Hey onemargie, I Guess I'm a little different in that I opted for no reconstruction, but my problem is the stomach, not the flat chest!!! :wink: I know it's frustrating having to wait so long for a surgery you need. Hope the QLD govt get it together sooner than later!! A9Views0likes0CommentsRe: Can't decide on treatment.
Hi @Roxette69, my situation was probably quite similar to yours, I was 44 when diagnosed, mum of three (4-7-9 at the time) and I also had Stage2, Grade2 ER+ PR+, 40mm on the left and various dcis in the right. I had double mastectomy & node sweep on the left (as there was one node involved) I did radio because of the node involvement, but was also told chemo would have limited benefit because of the Ki67 result which in my case was 5%. At the time I remember feeling that not having chemo was like not getting treatment, 'cos that's what we associate with cancer, but research has improved and treatments have changed. it's good to understand that this indicator has only been around for 5 or 6 years, so before that chemo was pretty much offered to everyone. I did go on the zolodex for ovarian suppression and Aromasin as my daily hormone tablet so far so good. Yes, I get hot flushes, but I figure I would have had them sooner or later anyway, and in my case they haven't been too bad. It's just over 18months now since my initial diagnosis and I've been on the hormone treatment for about 14-25 months. Honestly I haven't looked back. Ultimately, you need to go with a treatment you feel comfortable with. Trust your team, maybe your surgeon or GP or breast care nurse can help talk it through. Best of luck with your decision. Aine5Views0likes0CommentsRe: Anxiety, depression
HI AA as everyone has said let the tears flow. I had my diagnosis a year ago today I cried more than I ever have in my life and it was probably the most terrifying thing I've ever been through, but you do get through it. Worry is normal, it's okay. Good luck with your surgery.12Views0likes0Comments
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