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Mets in brain & liver after 5 yrs feeling good.
Just before Xmas I was diagnosed with Stage 4 breast cancer. To see my GP & later my oncologist so upset I knew it wasn't good. I have 40 tumours in my brain...after only having very slight headaches & 5 or so tumours in my liver...again only slight pain in my right side. My whole world was turned totally inside out. I…
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Brainless
I'd hoped that two years would be long enough for me to get my act together. But, no. I continue to forget what I'm doing, forget what I've done, forget how-to do things and where I've put things. I've actually given up doing stuff I like because I think I'm a danger to myself. Bandsaws are a bad idea in my current head…
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Phone Contact with Eastern Health Breast and Cancer Centre
Just wondering if anyone else has had difficulty contacting the Eastern Health Breast and Cancer Centre by phone? Maybe it's just me but every time I call I get transferred to an answer machine, either for appointments OR to speak to a Breast Care Nurse and am told someone will call back. And they usually do, however, I…
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6 years and counting my blessings!
Six years ago today I received a phone call from the nurse at my GPs saying that my GP would like to see me that morning. I knew that this was probably not good news about the mammogram and ultrasound I had had the Thursday before. It was a very brief visit where I was to hear the words suspicious for malignancy and the…
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Unfortunately someone else always has worse news
Yesterday I started Cycle 2 Round 1 of 12 chemo treatments, it hasn't gone to bad. I just woke with it being a very emotional day, continually crying at any little thing but thankfully woke (haahaa as if sleeping happened) feeling much better today. Whilst I was having chemo in Cancer Clinics very comfy recliner my Aunt…
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new to bcna
Hello all I've just joined the network. This is my status. Lumpectomy after DCIS insitu highly invasive, nuclear high grade, too small to be able to get hormone readings. Yes, I'm lucky....sort of. I now need to make the decision of radiation or skin,nipple sparing mastectomy with no radiation or chemo at this stage.. And…
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Spoons of energy
Here's an analogy I heard recently. It helps describe to people who aren't living with chronic pain/illness what it's like in a way that's a bit easier to understand. Every day, I wake up with 20 spoons full of energy. This is my entire allotment of energy for getting through a day. Getting out of bed, some days this takes…
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Feeling Stressed
Hi everyone, I haven’t posted for awhile have been going through treatment, not sure if I have posted this in the right category. Diagnosed with TNBC in October 2018. Have finished my 4 treatments of A/C every fortnight, body hasn’t cooed with it very well, been in hospital twice with neutropenia and rhino virus. Had a…
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Helpline
Is there a 24 hour helpline that I can call, desperate need to talk to someone?
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Breast Cancer surgery - the gift that keeps on giving
Hi all. Feeling a bit down about just being diagnosed with lymphoedema. Thought I had dodged that bullet, but alas, no. The Lymphoedema specialist gave me a booklet by Cancer Australia, but it lacks practical advice from women who have been there, done that. Lymphoedema affects my fingers, hand and arm. Grateful for any…
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Anxious weekend ahead
Well ladies I haven't posted on here for a while but do check in and see how everyone is travelling fairly regularly. I had my yearly check up today after having last years go smoothly, feeling great (other than the usual back pain and occasional nerve twinges from Rad damage etc), seeing my Oncologist or Breast Surgeon…
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Impact on kids
Hi everyone, I'm currently in week 5 of radiotherapy. My 8 year old daughter is struggling with my diagnosis and is showing signs of anxiety, lashing out a lot. She admitted she is worried about me and I asked her to tell me what she understands about what I'm going through and I think us talking about that helped. Me and…
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Happiness? What's that?
I've been in therapy for many years (about 26 years on and off) for complex PTSD. I've tried talking, Gestalt, CBT, medication and I've even had Transcranial Magnetic Stimulation (TMS). The one that has worked best for me is DBT - Dialectical Behavioural Therapy. But it's hard and complex and I practice it every day. I've…