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Friday Update - 19th April 2024
Welcome to the Friday Update, March has flown by us already and we are half way through April! There has been alot of activity at BCNA including the Murray Bridge SA Information Forum, the World Indigenous Cancer Conference and BCNA's Think Tank . We are off to Tassie this month for two more information forums in Devonport…
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Welcome New Members - 18th April 2024
Welcome to everyone who has joined the Online Network in the past week: @DD3399_85 @writespare @kathy99 @backintune @kk35 @telendm06 @Vic0002 @unicorn3 @StillAnnie @appleseed @Daisy1 @Charlie2024 @Jano @PatriciaAlcantara @Sckande @Sgb @mumtomany You have found your way to Breast Cancer Network Australia's (BCNA's) Online…
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Take part in research to improve our online services
We’re inviting members of the Online Network to help us improve our website and online services. This work is part of a project that aims to improve access to relevant information and support that is tailored to your personal preferences and experiences of breast cancer. It will cover My Journey and the Symptom Tracker,…
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Kirsten Pilatti - Monthly wrap for March 2024
https://youtu.be/0PAGv5dwJvw?si=2y6meIMB_SC3UdED
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Come along to our free Information Forums in Devonport and Hobart, Tasmania
BCNA is coming to Tasmania as part of our free national Information Forum series. We are bringing leading experts to events in Devonport on Tuesday 30 April and Hobart on Thursday 2 May to talk on a range of breast cancer topics. Our events are for anyone who has recently been diagnosed with breast cancer or who is living…
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BCNA Leads First National Roadmap to Collecting Metastatic Breast Cancer Data
A roadmap to finally count the number of people diagnosed with incurable and life limiting metastatic breast cancer (MBC) is a step closer thanks to the $1.5 million announced over the weekend by Prime Minister Anthony Albanese to fund a cancer data alliance. Almost two years ago a group of Breast Cancer Network Australia…
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Season 2: Podcast Series "What You Don’t Know Until You Do, with Dr Charlotte Tottman"
Charlotte is back with an 'unlimited' season! Season 2 of our popular Upfront About Breast Cancer podcast What You Don’t Know
Until You Do with Clinical Psychologist Dr Charlotte Tottman is available now (You have direct access via the bottom of the Online Network homepage) With over 58,000 listens, Season 1 proved to be a…
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When is your birthday?
Hello everyone, Following on from the amazing birthday list that was started by @socoda, thank you very much! Im calling out to all our members to let us know your birthday. We love an online celebration and on the day you will receive a virtual birthday cake that we can all share! No need to include the year you were born…
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Welcome New Members - 3rd August 2023
Welcome to all of our new members to join the Online Network recently: @daikym @Sister1991 @Amgorda @KimM @yutingt @Tarma @lizredpeng @Elise_Rim @GinGin @LouiseB63 @HowdyPartner @Auzzie_Rach @Leach @KtmKtm @Cococat68 @Kerry_O @PrisMay1 @TJ_77 @PLP You have found your way to Breast Cancer Network Australia's (BCNA's) Online…
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Time to process
Hi All, my intro post. Such a roller coaster of emotions and processing suddenly going from perfectly healthy to not! I had a Diagnosis 22/12/23 IDC with 2.9cm tumor and lymphnode involvement from BreastscreenSA. ER and PR +, Her -. (Xmas is harsh to get such news, both in the slow down of services and in telling nearest…
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39 years triple-negative early cance,through IVF treatment & start chemo mid-May24
Hi all, I m new recently diagnosis triple-negative early cancer (grade2). Still asking myself why I having cancer because I have good lifestyle, eat healthy food, just move in new house in Dec 2023, My husband and I willing to start house renov but nothing could happen because we need to fight cancer. I had bone scan, MRI…
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Struggling through Chemo
Hi all, My nurse has just introduced me to this group. I’m hoping to connect and share my story and hopefully somehow feel better. After being diagnosed and a short time later having a mastectomy and all lymph nodes removed, chemo started just before Christmas and I am struggling with it! Ive got another 2 months of chemo…
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Reconstruction info
I’m new here! I was diagnosed in late November and went ahead with a double mastectomy just before Christmas. An overwhelming experience! There was no option at the time for immediate reconstruction for a few different reasons. I’m 51 years old. i have now been referred to the plastics team at Fiona Stanley and am trying…
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Boob farewell?
I'm booked for surgery in 4 days for a unilateral mastectomy. I feel like I want to say farewell to the boob but am a little lost for ideas. On one hand, I want to say good riddance; on the other, it fed my children, gave partners entertainment and was a great, jiggly part of my life. I realise it's very…
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Surgery
Has surgery last week for DCIS mastectomy and implant and other side made to match my new boob. Found out yesterday that there was a 1 cm cancerous growth that hadn’t shown up on any of the scans,feeling so lucky that I had routine mammograms and that DCIS was found so early so grateful to Austin Health for their care they…
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Friday Funnies
So in an effort to begin the weekend with a smile I thought I'd post a picture of something I saw in an antique shop recently. Never mind about all the rest, when is THIS going to be listed on the PBS?! And on the reverse:
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Newly diagnosed and has spread to bones and liver
I literally found out 2 weeks ago that I have breast cancer. I just got back from an appointment today after all my scans to be told that it’s spread to my liver and bones. I’m absolutely shocked and terrified. I’m HER positive. I’m having a PET scan done to confirm about bones and liver and told surgery is not an option…
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Qld Survey on shaping the future of Cancer Care - FINISHES TODAY ..... so jump on NOW!
Have your say and help shape the future of cancer care in Queensland. This survey finishes today .... so jump on NOW if you'd like to add your 'two bits' .... https://www.health.qld.gov.au/system-governance/strategic-direction/plans/queensland-cancer-strategy
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Two different types of breast cancer (TNBC / ER+)
Moderator moved @kathy99 comment to own dedicated discussion:
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Wise words ....
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DCIS and HRT
I am was recently diagnosed with DCIS stage 1 - there is a lot to take on board - I am currently using HRT - which will be ceased very soon - I don't know what to use for menopause symptoms after HRT ceases - any ideas!!
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Looking for hope - (ENHERTU next treatment path)
Moderator moved @Kosta post from 'Activity Section' to 'General Discussion' Section:
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Confused. Brave face, crumbling inside
Long story short have had a lump over 12 mth. Mammogram found nothing. Us an biopsy and Left breast only, IDC er and pr positive, her negative +1. No special type.cribform subtype. Done pet scan and now Mri is more extensive then they think. Want to do masectomy in 2 and a bit weeks. Told that I can't have any extenders.…
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Newly diagnosed - tough day
Moderator moved @ruralmum2 comment to own dedicated discussion: