Quick! Questions??

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MaryB83
MaryB83 Member Posts: 45 ✭
in Newly diagnosed
Hi. Just thought I'd ask quickly what questions I should be asking at my meeting with the specialists this afternoon? Bit late to be asking but hopefully someone sees this!

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  • iserbrown
    iserbrown Member Posts: 5,552 ✭
    edited May 2018
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    @MaryB83

    https://www.bcna.org.au/understanding-breast-cancer/types-of-breast-cancer/

    Hopefully this will help trigger some questions for you.  If you have someone with you it will help but you will find the specialist will initiate the conversation and with the information they give questions will come.

    Not sure what Specialist you are seeing, Breast Surgeon, Oncologist, Radio et cetera

    If you are to have a Mastectomy or lumpectomy here's a link from the main website

    https://www.bcna.org.au/understanding-breast-cancer/treatment/surgery/types-of-surgery/


    Hope that helps
  • Sister
    Sister Member Posts: 4,960 ✭
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    Not sure who you are seeing but if you do a search at the top you may find what you're looking for from when others have asked the same.
  • SoldierCrab
    SoldierCrab Member Posts: 3,445 ✭
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    hi @MaryB83
     how did your appointment go?
  • MaryB83
    MaryB83 Member Posts: 45 ✭
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    I have to have 6 months of chemo before they will do my double mastectomy and auxiliary node removal, followed by rad. 
  • SoldierCrab
    SoldierCrab Member Posts: 3,445 ✭
    edited May 2018
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    Below are a couple of links to help you find your
    way around the forum and also how to find a breast care nurse and how to order
    a MY journey Kit if you haven't got one yet. 



    It can be a a whirlwind when we first get a
    diagnosed.... Breathe and take it one step at a time. 



    Navigating the online community (formerly the how and what thread)

    http://onlinenetwork.bcna.org.au/discussion/14879/the-what-and-how-thread/p1 

    Breast Care Nurses

    https://www.mcgrathfoundation.com.au/OurMission/OurNurses/FindANurse.aspx 

    My Journey Kits and other
    resources. 

    https://www.bcna.org.au/resources/

    BCNA Helpline 1800 500 258

    If you have any questions, concerns or require any further information
    or support please call 1800 500 258.  The Helpline is open Monday,
    Wednesday and Friday from 9 am till 5 pm EST and Tuesday and Thursday from 9 am
    till 9 pm EST.

  • kmakm
    kmakm Member Posts: 7,974 ✭
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    Bugger. How are you feeling about that?
  • Kiwi Angel
    Kiwi Angel Member Posts: 1,952 ✭
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    @MaryB83 that’s a lot to take in - thinking of u xoxox
  • Eastmum
    Eastmum Member Posts: 495 ✭
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    When you start @MaryB83? And do you know what Chemo schedule you'll be on?
  • MaryB83
    MaryB83 Member Posts: 45 ✭
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    I'm still waiting to be told it's all a mistake to be honest. Don't think it'll feel real until I start. I start within the week. I'm doing 1 treatment every 3 weeks for 3 months and then 1 a week for 3 months (unless something changes)
  • kmakm
    kmakm Member Posts: 7,974 ✭
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    Sounds like AC and Taxol Mary, does that ring a bell? There's some great info here about that. It's important to remember though that everyone reacts differently so try not to anticipate too much. You're on the breast cancer bus now, be kind to yourself along the way. Find a way to build in some treats and self care aling the way. Hang in there, big hugs. K xox
  • Sister
    Sister Member Posts: 4,960 ✭
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    There's a lot of us out here doing (or have done) AC and Taxol so we're all here to help you with any questions.
  • Eastmum
    Eastmum Member Posts: 495 ✭
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    Hi @MaryB83 - sounds exactly like the Chemo regime that I'm starting tomorrow! What day do you start? I asked a lot of questions about it on a discussion called 'Chemo hear I go' and there's a lot of great advice and info on there if you want to check it out. Thinking of you and wishing you well xxxx
  • kmakm
    kmakm Member Posts: 7,974 ✭
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    @MaryB83 I'm almost at the six month mark and several times a week I find myself thinking surely this isn't happening to me, this must be a mistake, any minute now I'll wake up and find this has all been a dream. So strange  :/
  • MaryB83
    MaryB83 Member Posts: 45 ✭
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    Good luck @Eastmum
    i start next week.
    its nice to know I'm not alone in feeling it's all a little surreal @kmakm
  • kmakm
    kmakm Member Posts: 7,974 ✭
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    You're never alone here Mary. We've got you  :)

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