Why not join the Living with metastatic private group? Access group via the link here.
Wow today I feel so terribly sad and sorry for myself shame on me.
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Hi therec@sam09 and @wendy55 so it’s takem me a few days to get my head around your posts I kept trying to reply but kept losing my shit. So now I’m on the front deck of our little holiday shack at Agnes Water that we managed to hang onto by the skin of our teeth during this climb to the top of this shitsville mountain we call breast cancer. And without sounding too fucking cliche it’s a bloody privelage to know you both and I’m so glad you can get on this forum and speak to us and open up about everything. It’s also quite personal what you guys have mentioned and I want to thank both from the bottom of my heart for saying it how it is it’s truly inspirational. Biggest hug to you both. Would love to join you for the cuppa if we can ever arrange it. Margie. X1
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Thank you to @iserbrown and @onemargie and to all the lovely ladies who have posted messages,yes, I do feel in a better place,I just quickly wanted to say to you and yours from me and mine, from my house to your house,may the new year bring us ALL the peace of mind and good health that we all so richly deserve, my partner and I will walk up the hill just outside our house and watch the fireworks off the beach, then we will walk home and probably go to bed,so certainly wont be "seeing" the new year in, however to those of you who do, have a glass of bubbles or two or three for me will you!!!
Will post again very soon,
my heartfelt thanks to each and every one of you, YOU are the most amazing group of women I have ever had the privalage of "talking" to,
wendy55xxxx7 -
Yes ,I think we all have our blue days. People often say to me , " you are so strong " but I don't feel that way. Having I V . Chemo every 3 weeks out of 4 is really no fun . What else can you do but turn up each week. At least the chemo nurses are very understanding and help to brighten your day. I find when I'm feeling really down my family and friends feel that way too when I'm around so I try and shake off the blues . Im lucky that I have a good group of support friends and an understanding husband who cops all hell when I'm feeling over tired and not coping well. I am greatful that I'm still here with metastic b.c. almost 6 years .so hears to keeping the chin up . Chemo day tomorrow. What fun.! And I wish you all a wonderful year ahead with lots of happiness and good health.7
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@wendy_h67 sending positive vibes. Wishing you a good chemo day! Take care and sending you a virtual hug x0
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@wendy_h67 I hope you don’t mind me asking, but have you been having chemo for 6 years?0
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Hi Sam. Big hugs from WA xx0
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Hi Hendrix,I started with I V Abraxine for 6 months then went on to Xeloda tabs until they started to fail and the side effects were causing alot of pain in my feet. I then went onto Aromison for about 2 years but sadly that started to fail and scans showed more bone mets. I had Afinitor tabs for a short period, but they caused high temps and flu like symptoms. So now I'm back on IV Abraxine which I started last December. Over 12 months ago. Its not really that bad . I get time off for good behavior and can go away for a week or 2. My oncologist even gave me my birthday off last year ,so I really celebrated. Really we are lucky that there is treatment available when one treatment starts to fail. It would be good to get more treatment on the PBS. though.2
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@wendy_h67 I take my hat off to you xx0
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Thank you, but Im not the only one. Today at chemo I got to chat to a couple of woman younger than me , who turn up regularly on a Tuesday for chemo, for metastatic breast cancer. We are known as the Tuesday girls and have a good old yak together while we are there. At least I have made some new friends by attending the chemo ward, so it does have it's benefits.1
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