Forum Discussion
Molly001
8 years agoMember
Palbociclib side effects
Hi all, I'm two weeks in to my first cycle of palbo. I've picked up a cold a few days in and can't seem to shake it. I'm waking each day with a horrendous headache, body aches, wicked fatigue and all the sinus symptoms and cough as well. My GP says there's no signs of infection caused by neutropeania, but I cant help but wonder if my body's defences just can't fight it OR if some of the symptoms are the palbo itself. I'm having bloods done this morning for review tomorrow, but wondered if any one here has experienced anything like this before I see the oncol tomorrow.
22 Replies
- LMK74MemberFingers crossed @Unicornkisses that Letrozole will be kind to us. I start on it December 5th my next oncology appointment and also will have the blood tests for the trial. Regarding this itch, I am using moisturizer from fridge and cold water sprays. So far the surgery has been the easiest part of this journey lol.
- UnicornkissesMemberI went for my examination and first lot of screening blood tests today.
I should hear on Monday if I am accepted, apparently they have to also check if I am eligible with the other medication I am on for migraine preventative.
If so, I will be allocated a group and given the medication on Monday.
I started the Femara last Monday, so far very dry mouth and eyes and a dry cough. Not sure if the disturbed sleep is the weather or the medication.
@LMK I hope you get some relief from the itch soon, have you tried your cream kept in the fridge so it is cold, cold salt water sprays, especially after a shower, and cool packs wrapped in a t towel? - LMK74MemberThanks @Unicornkisses, the nurses gave me the sigmacort which helps for awhile, but the itch is so intense at times. I'll be glad when all my skin is healed. Have you started on the trial yet?.
- UnicornkissesMemberHydrocortisone 1% cream also good for itchy radiation burn as long as the skin is not broken, just remembered.
- LMK74MemberThanks Molly, you lovely lady. Just want to get my hairbrush and scratch like hell lol.
- Molly001MemberOh, and huge congratulations to you for finishing treatment @LMK74!!
- Molly001Member@LMK74 so very brave of you to agree to the trial as I know you have been anxious about it. My side effects are very few now, so hopefully you'll do just fine... and if not, you can stop! I had really nasty radiation burns and I lost multiple layers of skin, but it healed remarkably quickly. All the best and take care xxxooo
- LMK74MemberHi @Unicornkisses, thanks for the advice. I've tried the claryntine for the itch and is helping a little. I finished treatment yesterday and I'm very burnt and starting to peel but no weeping skin as yet. I will be starting Letrozole in a couple of weeks.
@Molly001, I've reluctantly agreed to palas trial so will find out in a couple of weeks if I'm accepted and the group I'm assigned to. I hope you are feeling a lot better now. - UnicornkissesMember@LMK74 I could have started the Femara (Letrozole) straight after finishing the radiation, but I didn't have the script until I saw the Oncologist two weeks later, and anyway as I had quite bad burns all over my entire right chest and section of my back, that were being dressed and I was on antibiotics, I felt I could only deal with one lot of side effects at a time.
I also wanted to get a bloodtests for cholesterol and blood sugars before I started as it was over a year since they were done and I wanted a base reference before starting. So I had to see the GP.
I finished radiation on 21st October and I am starting the Femara on Monday.
I will keep you posted on how I do.
Hang in there with the radiation, the last week and the one after are really hard on the body and the fragile soul. Then you will suddenly find you don't need the strong pain tablets and the nasty burns are starting to look better.
Have you tried Clarytyne or Telfast for the itching, it was recommended by my radiation nurse and I really found it helped. - Molly001MemberLet us know how you go ladies @Unicornkisses @LMK74 It's great to be able to chat to others doing similar treatments. So much less lonely!! Best wishes xxxooo