Feeling lost and overwhelmed

Lefty1166Lefty1166 Country W. AMember Posts: 14
I have been living on this rollercoaster since being diagnosed with hormone receptive positive breast cancer in March 2017.I required a right mastectomy which I had only weeks after diagnosis as it was very invasive. Had 25 lymph nodes removed during surgery also.  Results came back, to hear it had spread into my liver and lung was a very big shock as I was still coming to terms with my surgery. To be told I have secondary cancer my world changed forever.On my recent scans there is signs on my bones now too. I am on tamoxifen. I wake up each morning and I feel like I am living in a dream.. 

Comments

  • LMK74LMK74 BrisbaneMember Posts: 505
    @Lefty1166, I'm sorry you've been hit with this diagnosis. What a dreadful shock to be told that. There is a metastatic group on this forum you may like to join where other ladies are in the same position. This disease totally sucks.
    Thinking of you
    Lisa x
  • Molly001Molly001 Member Posts: 293
    I can understand your feelings of being lost and overwhelmed. It's certainly news no one wants to hear. You've come to a great forum for support, though. There are ladies here living well with metastatic cancer. Have you spoken to a counsellor at all? @Marianne_BCNA may be able to put up some links and phone numbers for you.
  • primekprimek Broken HillMember Posts: 3,182
    I can only imagine how hard you have found your diagnosis. Have you joined the metastic breast cancer group? There are many ladies there that will understand and be able to support you and you can talk in a closed group when and if you wish. Link to join is below.

    http://onlinenetwork.bcna.org.au/group/2-living-with-metastatic-breast-cancer

    Also I am wondering if you are connected with a breast care nurse for support and if you have your Hopes and Hurdles resource kit. The kit gives a lot of information and free. The link to order it is below.

    https://www.bcna.org.au/resource/kits/hope-hurdles/

    The cancer council also offers free counselling services which you might find helpful  ph 131120. Details below.

    http://www.cancer.org.au/about-cancer/patient-support/131120.html

    I hope they are able to stabilise your bc soon and know there are many many more options to treatment should things alter. Kath x
  • Brenda5Brenda5 Burrum Heads, QldMember Posts: 1,591
    It doesnt mean you are going to leave us, just means you are a high maintenance gal. Tamoxifen just on is own can be trial enough. <3 
  • Lefty1166Lefty1166 Country W. AMember Posts: 14
    Thanks everyone yes I do have a breast clinic nurse and I have all the resources available. I do suffer from other health issues as well so it does come abit to much at times. 
    One day at a time .
  • ZoffielZoffiel Member Posts: 876
    Yep one day at a time @Lefty1166 I truly hope you have some good luck coming your way, because I believe that is at the core of this whole cancer shitfight. Luck. The fickle finger of fate ( or foot of fate if you are an old Monty Python fan) Marg xxx
  • socodasocoda LeumeahMember Posts: 1,457
    Hi @Lefty1166, just wanted to send you a big warm hug. It's a shocker of a disease. When is your next appointment with your oncologist and have they proposed a new treatment regime for you? Let us know how you're getting on. Wishing you stability. Xx Cath
  • primekprimek Broken HillMember Posts: 3,182
    It can get so overwhelming with other health issues to cope with. Is it worth it? ..by golly it is. Hoping you have a better day today and know we are here for you. X
  • Lefty1166Lefty1166 Country W. AMember Posts: 14
    edited November 3
    I can only imagine how hard you have found your diagnosis. Have you joined the metastic breast cancer group? There are many ladies there that will understand and be able to support you and you can talk in a closed group when and if you wish. Link to join is below.

    http://onlinenetwork.bcna.org.au/group/2-living-with-metastatic-breast-cancer

    Also I am wondering if you are connected with a breast care nurse for support and if you have your Hopes and Hurdles resource kit. The kit gives a lot of information and free. The link to order it is below.

    https://www.bcna.org.au/resource/kits/hope-hurdles/

    The cancer council also offers free counselling services which you might find helpful  ph 131120. Details below.

    http://www.cancer.org.au/about-cancer/patient-support/131120.html

    I hope they are able to stabilise your bc soon and know there are many many more options to treatment should things alter. Kath x
    primek said:
    I can only imagine how hard you have found your diagnosis. Have you joined the metastic breast cancer group? There are many ladies there that will understand and be able to support you and you can talk in a closed group when and if you wish. Link to join is 
  • Lefty1166Lefty1166 Country W. AMember Posts: 14
    Thankyou ladies for your kind words of support
  • Marianne_BCNAMarianne_BCNA Administrator Posts: 24
    Hi @Lefty1166, looks like you have received some fabulous support and ideas from the wonderful community here and also have your own resources in place but I just wanted to reiterate that we have nurses on our helpline who you can contact if you have any questions or concerns or just need to talk. Our number is 1800 500 258 and we are open until 9pm on Tuesday and Thursday evenings. Hope things get a little easier and less overwhelming for you soon
  • Lefty1166Lefty1166 Country W. AMember Posts: 14
    edited November 3
    primek said:
    I can only imagine how hard you have found your diagnosis. Have you joined the metastic breast cancer group? There are many ladies there that will understand and be able to support you and you can talk in a closed group when and if you wish. Link to join is below.

    http://onlinenetwork.bcna.org.au/group/2-living-with-metastatic-breast-cancer

    Also I am wondering if you are connected with a breast care nurse for support and if you have your Hopes and Hurdles resource kit. The kit gives a lot of information and free. The link to order it is below.

    https://www.bcna.org.au/resource/kits/hope-hurdles/

    The cancer council also offers free counselling services which you might find helpful  ph 131120. Details below.

    http://www.cancer.org.au/about-cancer/patient-support/131120.html

    I hope they are able to stabilise your bc soon and know there are many many more options to treatment should things alter. Kath x

    LMK74 said:
    @Lefty1166, I'm sorry you've been hit with this diagnosis. What a dreadful shock to be told that. There is a metastatic group on this forum you may like to join where other ladies are in the same position. This disease totally sucks.
    Thinking of you
    Lisa x

  • CLouiseCLouise Member Posts: 5
    Hi @Lefty1166
    I was diagnosed with stage 4 a few months ago. Spread to bones in skull, shoulder, hip and ribs.
    Big shock. Thrown into menopause and a very differnt life!!
    Ive found reading reading the comments from all the other stage 4 ladies is SO very very helpful. Its a very overwhelming and lonely feeling being diagnosed with stage 4 but this group of women make me feel comforted and nurtured.....take care xxx
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