IBC My storify page

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Kombigirl
Kombigirl Member Posts: 47 ✭
edited October 2017 in General discussion
Hello all,
I have started a page of resources for people diagnosed with Inflammatory Breast Cancer, helping to educated myself and hopefully others. There is very  little information about IBC, and the information is scattered across the web. I hope this page makes it easier for people to find the relative information on IBS. Ange xx http://https//storify.com/AngeUC2017/inflammatory-breast-cancer

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  • Nannatash
    Nannatash Member Posts: 63 ✭
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    Hi I clicked on link and not working the page thankyou
  • SoldierCrab
    SoldierCrab Member Posts: 3,445 ✭
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    http://onlinenetwork.bcna.org.au/discussion/17410/https//storify.com/AngeUC2017/inflammatory-breast-cancer
    try this Link everyone 
  • Kombigirl
    Kombigirl Member Posts: 47 ✭
    edited October 2017
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    https://storify.com/AngeUC2017/inflammatory-breast-cancer this is the working link to use. Thanks Ange
  • Zoffiel
    Zoffiel Member Posts: 3,372 ✭
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    Nicely done, Ange,you've pulled together some good resources.

     I didn't know anything about inflammatory BC. This shit is all nasty, but your version takes the toxic titty award. Not a competition anyone wants to be in. Marg xxx
  • Kombigirl
    Kombigirl Member Posts: 47 ✭
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    Thanks for looking over it Marg, yes it's a nasty one alright. I've learned so much about IBC in the last few weeks. Thankfully it's rare. My job now is to spread info on IBC so everyone I know is aware that BC presents in many different ways, not just a lump. I'll keep adding the link to each of my posts. Ange xx. https://storify.com/AngeUC2017/inflammatory-breast-cancer
  • Jane221
    Jane221 Member Posts: 1,195 ✭
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    Great information Ange, I'm sure it will be very helpful for others in your situation. Best wishes, Jane xx
  • Kombigirl
    Kombigirl Member Posts: 47 ✭
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    Thank you Jane xx https://storify.com/AngeUC2017/inflammatory-breast-cancer
  • Afraser
    Afraser Member Posts: 4,372 ✭
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    Well done, it's not the diagnosis you want but it's great to bring together well presented information.  Symptoms can be difficult to read. I had many of the symptoms described, my GP also wondered about an abscess or mastitis, but referred me to a specialist immediately and didn't brush my concern aside. I had myself almost totally convinced I had IBC (that was in the days before I gave up Googling!) . I didn't. The cancer cells however were causing a high degree of irritation in nearby healthy and normal tissue. Had they not done so though, I might have been a long time before realising anything was wrong as I couldn't feel a lump at all.  So entirely agree, get anything unusual checked sooner rather than later, and get it checked out by someone who knows a lot about breasts. If it really is something temporary and will go away, great. But if it isn't, you want to get onto it as soon as possible. Many thanks.
  • Kombigirl
    Kombigirl Member Posts: 47 ✭
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    Thank you for checking the page out Afraser. I'm glad your GP referred you to a specialist quickly. I wish all GPs were like that, instead of presuming it's an infection of some sort. xx

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