Is it Neuropathy or not??
What I think of as my neuropathy started in the 2nd lot of chemo I had - dox and hercepton. It was quite fascinating, feelings like butterflys running down my arms, up my legs, across my back and chest - I actually liked the feeling and on many sleepless nights and slack days it gave me something to do. Then the feet got heavy and clumsy. I couldn't wear thongs or slip on shoes cause I couldn't keep them on. I got clumsy, but I had no nerve pain and I could still feel (mostly). After chemo while still on hercepton this all continued to get worse. I had my first day out while doing radio and when I got home I was very tired and I suddenly felt like I'd touched a power plug - my whole body lit up - scared the crap out of me and I rang my onc. He asked me a few questions and said I'd be fine etc the usual. That was the worse one I've had but I continue to get these all over body shivers, like goose bumps all over but they last minutes not seconds. Very weird feeling. My hair even stands on end.(or feels like it) They are less often so maybe they will go away. But is it neuropathy or not? It is my feet that are the problem, otherwise No pain, no numbness (if I walk on a hot surface it takes a little while to register hot, but I do register). Stiffness, thick sox feeling, clumsy, bloody annoying but what. I fear really pushing the onc as I fear losing license.
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