Posted on behalf of Ildiko 22/07/17
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socoda
Member Posts: 1,767 ✭
"I have just been diagnosed and my heads still in a tailspin. I'm 68 and my birthday's 28 August. Appreciate contact."
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@Ildiko, Welcome to the forum and the most beautiful supportive ladies and gents. Please feel free to ask any question that you need information on as there are no silly questions. We are all at some stage of this roller-coaster and understand exactly where you are coming from.
Ildiko, with your diagnosis, have you had biopsies? Are you scheduled for surgery? It is a very fast paced, frightening phase when you are first diagnosed. Once you have your treatment plan in place it is a lot better and doesn't feel quite so out of control. Do you have a breast care nurse assigned to you yet? They are an invaluable source of information and comfort. Wishing you all the best and please use this site as a base for your information, if you need to vent, if you're feeling scared we all get it and are here for you. You are NOT alone in this. Xx Cath
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Hi @Ildiko and welcome. We are here and listening. Anything you would like to know ask away. Have you ordered your My Care kit as yet? Link below
https://www.bcna.org.au/resources/my-care-kit/
We all feel shock after diagnoses and your head is in a spin with the information. Try and take someone to your appointments, not only for support but remembering information. Write down questions you might have. Write down info given as it's easy to forget later what was said. Keep copies of pathology tests etc. I bought one of those squeeze box type files to put everything in. Info on chemo. .. On surgery... On exercises.... Pathology.... Bills. It all went in the box. One day I hope to burn the darn thing.
Take any business cards offered as it has contact information so you can ask questions later.
Take care. No question is stupid or too personal here...remember that. Kath x2 -
Hello @Ildiko, so sorry to hear of your diagnosis but welcome. I'm so glad you have found us early as there is so much support and information here. We might all have different diagnoses and treatments but we have all been where you are and understand how overwhelming these early days can be. At the moment you have no choice but to go from test to test and try to absorb all the information being given to you. Once you have surgery or at least have some pathology results you will be given a treatment plan and you'll feel more in control.
I found it helpful to keep a list of all the questions I came up with between appointments. With so much going on it was really easy to forget to ask something when sitting in front of the surgeon. There's no such thing as a silly question and it gave me a bit of control to tick them all off!
The My Journey kit also has a section to keep track of your appointments and expenses.
Keep in touch Ildiko and let us know how you are doing. You are most definitely not alone, we are all here for you. Jane xx2 -
Hello Ildico
So sorry you have had to join this club but this website is the right place. When I read the posting I immediately thought to write and say about notes, questions, taking someone with you - then I read the posting by primek and she has said exactly what I would tell you. You are fortunate to have found this site early. Write every question down and don't leave any appointment until someone has answered them for you. NO question is too small. Ask ask ask. Whilst your head is in a spin you may hear/comprehend things incorrectly so it is good to have someone with you to take notes and understand what is happening. If something does not feel right, ask your specialist team - that is their job BUT it is your body and you know it best. All the best for your weeks ahead - and keep us informed as we are here for you.
Big hugs Summer :-)0 -
I was 67 when I was diagnosed. I don't know your circumstances, but I had been healthy and was still working full time. It was a profound shock that it could happen because like many who share this problem, " it was never going to happen to me"! I will be 72 in September, still working (I like it and it's good for me!) and getting on with life, including 2 grandchildren I didn't have at 67. So take heart. Your life hasn't run away, it's taken a turn that you didn't plan and may never want, but there can still be many things to look forward to. In addition to all the good advice already given, I would suggest taking one day at a time, don't Google (it never helps and can scare you silly) and don't spend time worrying about problems that may happen. They may not ever happen. Best wishes.1
