So stressed Triple neg 5cm need positive stories

Tripple QLDTripple QLD Member Posts: 8
edited January 2017 in Newly diagnosed
So stressed out. Just diagnosed with nearly 5cm triple neg idc at 33yo, no children yet, with very likely node involvement (not enough cells for conclusive but looks very likely in an enlarged node underarm)  but all other scans and tests show no other cancer. I need to hear from others with same type and relative size and years beyond to have a positive outlook. Can't sleep, can't eat after seeing surgeon today - mastectomy surgery within next 2 weeks and auxiliary clearance then chemo and radiation. I am just so stressed about weather I bother saving my eggs as I read the outlook isn't that good for large triple neg but all I've ever wanted is children but no point if I won't be around.  please I need to hear from others who have positive stories even ones with reoccurrence of large triple neg idc. Thank you.


  • UnicornkissesUnicornkisses Central CoastMember Posts: 388
    I can't help you with your concerns as I do not have your type of cancer nor am I your age, but I am hearing your desperation. There will be others who come here with their stories to help you, soon. In the mean time, search through the topics on this page, you might find someone else who has asked questions that answer your concerns and can give you some help. Someone told me to take some deep breaths, it helped. And to take each step at a time, it is too stressful to rush ahead all at once, perhaps you can find some comfort there too?
  • BeckywBeckyw Member Posts: 21
    Breathe- the worst part is now. With no plan laid out it feels like cancer has control. 
    Im also 33 and had a 5cm tumor and no kids. I do know of a couple girls around our age whove been through triple neg that are fine. Stay away from dr google and social media articles that relate to cancer. 
    Welcome hun, but feel free to shoot me a message if you want to chat with someone else xx
  • Hopes_and_DreamsHopes_and_Dreams Gold CoastMember Posts: 682
    Hello Tripple,  even though we all have different types of cancer, the one thing all the ladies on this site share is the feeling of shock and helplessness in finding out we have cancer. 
    You will find so many positive stories on this site.
    I don't have much to add to what had already been but just wanted to let you know that you are not alone.
    We are all here for you. Sending a hug, Jane xx

  • lisboylisboy Member Posts: 91
    Dear Hopes and Dreams
    i don't post much anymore but came on here and saw your post and felt compelled to answer you. I had triple negative multifical,ie 3 small tumours and 3 positive nodes. I am now 2 years post diagnosis. It seems hopeless and incredibly scary at the start but this is treatable!! Big gains in research and lots of worldwide focus on triple negative breast cancer treatment. It helps to read other survivorship stories and there are plenty of them with similar and bigger size tumours than you have. It s hard to find histories on this site and unfortunately a lot of great blogs seem to have disappeared. If you go to breast you will find a whole section on triple negative with threads all about women who are thriving  up to 10 years and more after a triple negative diagnosis. Another credible site is tnbc foundation. Tnbc foundation site also has discussion forums and up to date research posted on it. 

    There are many other women on here who are doing well several years down the track and I'm sure they will also post. I understand totally how you feel, and it is important to know that not only can you survive but statistically you are likely to survive. Don't buy into all the doom and gloom on the web about tnbc. A lot of it is lazy reporting quoting statements from years ago.
    You have a treatable disease and you can get through this!
    I wish you all the very best and take care,
  • Ann-MarieAnn-Marie Member Posts: 1,158
    Hi @Tripple QLD here is a link to all the post on the online network in regards to "Triple negative". You may like to take a read through the conversations. Our website also has a section on triple negative- click here. The members of the online network are wonderful and are here to answer any of your questions.
  • gurneysgurneys MelbourneMember Posts: 218

    Hi, I was triple neg, 1.8 cm. 1 year on and I'm all clear. Lumpectomy, chemo then bilateral mastectomy (my choice, preventative as also BRCA2 pos).

    As the others have said, don't buy into all the hype you read online about triple neg. My doctors weren't concerned about it being triple neg at all and now I've been given the all clear. If you are concerned about your fertility, speak to your oncol about the effects of chemo on your eggs. That was one of the first things my oncol raised with me.

    Breathe. It's a lot to take in at the beginning and filtering through all the info. Feel free to ask any questions though.

    Best of luck


  • primekprimek Broken HillMember Posts: 3,763
    I don't have your diagnosis, but I just wanted to say hi and agree with above posts, both on children and the negative reporting on tnbc.  You don't have to decide right now if you will have children but give yourself the opportunity to be able to if you do decide this in the future. We don't know what our futures holds, breast cancer or not, but having choices is always a good thing. Take care. Kath x
  • mum2jjmum2jj Member Posts: 3,126
    Hello there, I am a two time triple negative survivor.  My first diagnosis was 3cm, aggressive with one 1cm enlarged positive node.  I had lumpectomy, chemo, rads. I was 47 at the time.   Unfortunatlely 6 months after all treatment completed I had a recurrence another 3cm aggressive tumour, all nodes clear this time. It was about 2 cm away from original tumour.  Now the good news is that I am  now 54 and got my 5 year all clear form second diagnosis in May last year, so heading for 6 very soon.  Yes I had to do more chemo and have a mastectomy, but here I am nearly 6 years on.  Hang in there, there are many stories like mine.  One day at a time, remember to breathe.
    Sending you huge hugs.
    Paula xxxx
    PS I'd be saving the eggs.   
  • onemargieonemargie queenslandMember Posts: 744
    Hi there tripple qld. I got diagnosed with triple neg may last year. 3 cm tumor no lymph node involvement and scans all clear had a mastectomy and chemo by choice as didn't want lumpectomy rad and chemo. Had 8 rounds of chemo 4 AC and 4 paclitaxol. Had other boob off in nov as a preventative again my choice. Not interested in having reconstruction as I don't want more surgery but that's my choice. Prognosis is good for me too my oncologist said triple neg responds really well to chemo so rest assured yoI'll be good too. I'm 44 and have  older kids but don't think you can't have a family. Lots of women do it with a breast cancer diagnosis. Had the genetic test too as I'm under 50 with no family history. I'm Negative for that. The other good thing about triple neg is no tamoxifen etc after to take as it's not hormone receptive. Stay positive take care of yourself make sure you eat well and stay hydrated you don't want any delays with surgery or treatment because your crook. I agree with the other girls don't google it!! Feel free to send me a message if you'd like to chat. This forum gives you lots of advice and support too. Margie 
  • ccasperccasper Central Coast, NSWDragonfly Posts: 190
    Hi there
    i am 30 yrs old triple neg 3.4cm lump with some node involvement. I finish chemo today and having a double mastectomy by choice with an immediate recon in 3 weeks time.
    My advice:
    dont google
    stay hydrated
    know you can beat this
    eat well
    take the meds during chemo
    keep active if you can
    and if you have time to save some eggs do it.

    i have a little boy so I didn't prioritize it only as I already had had him. If I am able to have any post chemo, it would be a bonus. My cycle was not good timing and I started chemo within two weeks of being diagnosed. 

    You can do this!!!
  • primekprimek Broken HillMember Posts: 3,763
    So happy you can see a future. Hope and a fighting spirit will carry you through. Gather those you love close to you and accept all offers of help. You will draw strength from others and they from you. Looking forward to hearing your story evolve. Kath x
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